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Rare Disease Day 2018
I took today off from work. Sadly, it was not to enjoy the almost 60 degree February day. Today was doctor day. And as I traveled two hours for the 17 mile trip into Manhattan this morning, I had...
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Superfluous Tissue
6 years ago I was trembling with fear. I sat up most of the night. I paced the floors. I was scared out of my mind. No stranger to surgery, this one was way different. Sometimes I actually forget...
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Dear Meghan… Mother’s Day 2018
Dear Meghan, Almost 15 years ago you entered this world kicking and screaming. You scared the heart out of us, the doctors, and the nurses. The NICU nurses called you “Miss Attitude”. Even in...
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When you reach the end of your rope…
There is no other choice really. We must hang on. We must always hang on. So often this is easier said than done. Last weekend I stayed up all night Saturday digging out from under a pile of...
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Forever…
When I married my husband I committed to forever. It was a good call. When we decided to have a child, we understood she would be our baby forever. No regrets. But some time in the fall of 2011 a...
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(Living) “In Prep for the Climb”– PTEN Awareness Day 10/23/18
I’m aware of Breast Cancer. As a survivor now of 6 years and the daughter of a 21 year survivor, I am aware as I dry from my shower facing my mastectomy scars every morning, that breast cancer is...
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It’s possible…
It is possible to have conflicting emotions and have them all be true. It is possible to feel so tired you wonder how you will function, and simultaneously grateful for the very things that made you...
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“I am the Lorax, I speak for the trees.”
The call came to my cell phone on a Friday afternoon a few weeks ago. It took me a few minutes to process that Sharon from the Teddy Atlas Foundation was telling me Meghan had been selected to receive...
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It’s This Day to Day Living…
And that might be an accurate description of my current assessment of living with Cowden’s Syndrome. It’s so hard to put into words. Those who don’t understand are likely to think I’m insane. When...
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Blessings and Sorrows….
Blessings and sorrows are not mutually exclusive. Disappointment can exist alongside gratitude. You can have hope while being grounded in reality. Faith doesn’t mean you’re never sad. Laura Story wrote...
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