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Relax, Nothing is Under (My) Control
Today I dropped my daughter’s iPad. Down a flight of stairs. With no case. I’ve never seen quite so many pieces on a screen. But, it still turns on. And somehow we all managed to remain calm. My...
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Local Newspaper Coverage
This is already all over for my local friends, but for anyone else who is interested, this article was written for our local newspaper. It will publish in print Monday, but is in the online paper...
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Inspiration
Mother. Father. Daughter. Son. Spouse. Sister. Brother. Grandparent. Aunt. Uncle. Niece. Nephew. Friend. If we are lucky, we connect the word “Inspiration” with one or more of them in our...
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DO SOMETHING!
The story of how a New York City girl got the ear of a West Virginia Congressman is a long windy one that involves the depth of love and dedication the United States Marines hold for their own. That...
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A Letter to Me as a “Mommy-to-Be”
Dear 30 Year Old Me on Mother’s Day, Listen up. Yes, you – acting as the general contractor; living through and participating in your house overhaul, while carefully moving your pregnant belly...
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The Days are Long, but the Years are Short…
A wise person once told me this. I think Meghan was young, and in that two-year span where most of her time was spent screaming. I admit to wanting those days to end when I was in the middle of...
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Justifying Our Existence
There was a post that showed up in my news feed this week from http://www.themighty.com. Read The Secrets of People with Chronic Illness here I can’t seem to shake some of the thoughts from my head....
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The Waiting Place…
A quick Google search brings the definition below when the word “patience” is entered. pa·tience ˈpāSHəns/ noun 1. the capacity to accept or tolerate delay, trouble, or suffering without getting...
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Counting… Our 400th Post!
“Count your many blessings, name them one by one…” Grandma used to sing years ago when we would complain about nonsense. She was a little tough sometimes my Grandma, and maybe that’s where I got it...
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Body Betrayed
The first time I felt the pain it was last summer. It was under my right implant, and from my armpit a bit down my side. The pain lasted a few days and then eased itself into a chronic state of...
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On Your 13th Birthday…
August 9, 2016 Dear Meghan, As I sit to write this some time in the middle of the night, I am reminded of the early years, when so many of the middle of the night hours belonged to the two of us....
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Overlap and Regrowth – Living with Cowden’s
So, the night I was recovering from my breast surgery on August 19th, I haphazardly checked my Email. There sat an Email from Meghan’s endocrinologist that shook me out of my anesthesia recovery pretty...
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Light Through the Lens…
I think I blinked, and the calendar changed from October to December. Some weeks I can do nothing more than plan day by day, because to look too far is overwhelming. But, I “lost” the fall in a...
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To Do Lists, Digital Footorints and Random Thoughts
I’m not one for New Year’s Resolutions. I don’t believe in waiting for a specific day to make changes. If they are needed, wanted, or warranted – we make them. Right then. Otherwise, I’m all about...
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A REAL Love Story
I’m not one for Valentine’s Day. Never was. It didn’t matter to me if I was dating or single, it just never made sense. The “Hallmark Holiday” seemed determined to bleed money out of people who...
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Richmond County Savings Foundation
If you were with us at “Jeans for Rare Genes” you heard me announce we had received a grant for $2500 from the Richmond County Savings Foundation. This story Inspirational Staten Islander to host Fund...
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AHCA, High Risk Pools, and My Child’s Future
I am angry. I am hurt. I am worried. I have stayed out of politics through the entire tumultuous 2016. I have serious issues with many politicians. I am not here to talk about them directly. I am...
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“… Turn on the Light!” -Albus Dumbledore (J.K. Rowling)
Last week my daughter pulled on a shirt before we headed out to the doctor for the umpteenth time this summer. I didn’t think much of it at first. I was grateful she was dressed and pulled together,...
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Invisible Illness – Sometimes We ALL Need Help
The day starts with me laying in my bed, trying to wrap my mind around the fact that it is time to face another day. I lay there a few moments. My heart rate begins to rise. I feel the familiar ache...
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Time flies…
February Break. A time to refresh and renew. Mostly. Except here. Here it’s a time to go as hard and fast as possible to get as many things done as possible. Some of those things are Cowden’s...
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